Spinal Cord Injury Alberta

 

 

 

 

 

 

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Invitation to Participate in Research on Edmonton’s Resilience

We would like to invite you to participate in a research study conducted by students at the University of Alberta. The student researchers are enrolled in a course with the Peter Lougheed Leadership College called INT D 406a: Capstone Course in Leadership, taught by Dr. Debra J. Davidson. One of their course requirements is the conduct of a research project. This year, our research project will explore Edmonton’s Resilience. We will explore features of our city that contribute to our ability to respond to challenges and opportunities we may confront as a result of climate change. Each student has been tasked with developing an individual research project. Students will be covering a wide diversity of topics about our economy, governance, transportation systems, energy and green spaces, information and education systems, vulnerable populations, and the values and perspectives of residents. Our objective for this research is, first, to provide students with training and experience in conducting research. Second, we hope our findings will assist city planners in building Edmonton’s Resilience. The instructor and students have not received any funding to support this study.

As a representative of an organization of interest, or a student or resident of Edmonton, we would like to conduct a short interview with you, to provide you with an opportunity to share your own perspectives and experiences. We anticipate that the interview will take approximately 15-30 minutes, although you may talk longer if you wish. The interview can take place at a location of your choosing. We would like to audio-record your interview, however if you would prefer not to be recorded, our student researchers will take notes. The students and the instructor will be the only people who will be able to see or hear the interview notes or recordings. This information will be stored on a secure, password-protected server until the end of the class (April 2019), after which it will be destroyed.

Students will then write reports based on their research to be submitted to the instructor, and also offer oral presentations in class, as part of their class requirements. Councilors and staff members with the City of Edmonton will be invited to the oral presentation. In these reports and presentations, neither your name, your organization, nor other personal information be revealed, and we will make every effort to ensure that any quotes used from your interview do not unintentionally identify you. All interview participants will be identified with a number or fake name, and affiliated as “university student,” “resident,” “non-governmental representative,” or “governmental representative.”

There are no direct benefits to you as a result of participation in the research project, although you might appreciate the opportunity to share your perspectives.  We do not foresee any risks of involvement either. Participation is completely voluntary. You may choose not to participate, you may stop the interview at any time. If you decide after the interview that you would prefer not to have your interview included, you may contact either Dr. Davidson or one of the student researchers up to one week after the interview takes place. We will then exclude your interview from the study, and destroy any notes and recordings from that interview.

If you would like to learn more about this study before you decide whether you would like to participate, you may contact Dr. Davidson at debra.davidson@ualberta.ca. Also, the plan for this study has been reviewed for its adherence to ethical guidelines by the University of Alberta Research Ethics Board (ID Pro00087826). For questions regarding participant rights and ethical conduct of research at any time before or during the study, contact the Research Ethics Office at +1-780-492-2615.

If you choose to participate, please sign the Consent Form provided, and indicate whether you agree to have the interview recorded.

 

Hello Partners and Members of FALA / Bonjour partenaires et membres d’ALFA:                                 

                                                                                                    français à suivre

DRAFT Recommendation to the Senate: Effective Complaints Management

Background:
 

There is a legitimate concern that if the Accessible Canada Act comes into law, people with disabilities can get caught up in the bureaucracy of the complaints process. All of us have had the experience of being told to talk to one person and then that person says oh no, you should talk to someone else and before you know it, your chasing your tail.

No one wants that.

However, it is a bit tricky with the proposed Accessible Canada Act. Not all complaints go directly to the Accessibility Commissioner, the person tasked in Bill C-81 to enforce most of the Act. For example, the Federal Public Sector Labour Relations and Employment Board would deal with complaints in its area. The Canadian Radio-television and Telecommunications Commission would deal with complaints in its area. And the Canadian Transportation Agency would deal with complaints in its area. So, you can imagine how it could be difficult if you have made a complaint in one place, but really you are supposed to make the complaint somewhere else. Or, if you have made a complaint and that particular complaints department isn’t doing anything.

FALA wants complaints resolved quickly with no “red tape”. People should not have to fight a complicated system to have their right to a barrier free life.

When presenting to the HUMA Standing Committee of the House of Commons we told them about our concerns regarding the complaints process. Bill C-81 was changed to recognize that people who present complaints may need additional time to submit an appeal. An appeal could be made in a time period of 60 days instead of what was originally 30. As well, the independent appeal review process has been amended to allow for more than one person to be involved.

We were also told that the Government of Canada is developing a streamlined complaints process referred to as the “No Wrong Door” concept. The idea is that no matter which place you go to make your complaint, it will be dealt with efficiently and in a timely manner.

We want to make sure that it is written right into the Bill that the Accessibility Commissioner is the person in charge regarding the complaints process. The Accessibility Commissioner creates the process and holds all other federal regulated organizations (entities) accountable to the process.

Here’s what we propose:

Here’s our DRAFT recommendation: Effective Complaints Management

The Accessibility Commissioner must have the authority to establish, monitor and enforce a standardized process for receiving, responding to, and resolving complaints. This process must be imposed on all government departments and organizations subject to the Accessible Canada Act. The Accessibility Commissioner must provide details of this process within 180 days of commencing its mandate.

The Accessibility Commissioner must publicly release each year a complaints summary report listing the types of complaints, organizations involved, compliance orders issued, monetary penalties/settlements, and resolutions.

As always, your feedback is welcome. Please get back to us by February 6.

 

Click Here to Give us your feedback

 

 

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Questionnaire: Disability and Social Isolation
Evaluating the impact of community based athletic programs on social isolation in people with physical disability

Please fill this quick survey and let us know your thoughts (your answers will be anonymous).

Thank you for participating in our questionnaire.

Questionnaire

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Lower-limb Exoskeleton Market Survey
With the results to this survey we aim to understand the necessities of those who need lower-limb exoskeletons, whether for personal or professional use, and develop new solutions to the problems based on the direct feedback from the users

Survey

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People who are unable to work due to a disability, receive seniors benefits or who are on income support will for the first time have their payments indexed to the cost of living, if a new bill is passed in the Alberta legislature.

Bill 26, introduced Thursday by Community and Social Services Minister Irfan Sabir, also increases the monthly amounts paid to recipients of Assured Income for the Severely Handicapped (AISH), the Alberta Seniors Benefit and Income Support on Jan. 1.

If the legislation is passed, a single person on AISH would see their monthly benefit increase from $1,588 to $1,685. A single person with two children would receive $1,985 a month, up from the current amount of $1,788.The move would mark the first increase to AISH payments since 2012.

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This series of three presentations provides education relating to prevention of and care for individuals at risk of developing pressure injuries. These presentations will be of interest to clinicians, home medical equipment providers, and care-providers. The sessions will take place over three consecutive Tuesdays beginning Nov 20. Each session runs approximately 40 minutes, starting at 12:05 (MST) Mountain Std Time.

If you are unable to attend but would like to view recordings, register for any or all three anyway. On the day following each session you will receive a recording of that webinar.

Clinical Concepts Relating to Support Surfaces and Prevention of Pressure Injuries

Join us for a webinar on Nov 20, 2018 at 12:05 PM MST. Mountain Std Time

Register now!

This is the first in a series of three presentations providing education relating to prevention of and care for individuals at risk of developing pressure injuries. These three presentations will be of interest to clinicians, home medical equipment providers, and care-providers.


This first session focuses on Clinical Concepts Relating to Support Surfaces and Prevention of Pressure Injuries. Our presenter, Kelly Bethune, OT. Kelly has 22+ years experience working as an occupational therapist across the continuum of care with a focus on community in both private and public health care settings. Kelly ha a BSc(OT) and an MRSc. Kelly works part-time for Island Health (Vancouver Island) and part time for her private practice Peninsula Community Therapy Ltd.

Learning objectives for this session include;
- Learn who is involved and the approach in selection of a support surface.
- Review therapist clinical assessment criteria 
- Define a support surface and understand its’ interface with skin in the prevention of pressure injuries.
- Review terms commonly used in reference to qualities of a support surface.
- Examine categories, types, and characteristics of support surfaces with clinical applications.
- Learn the how to assess the effectiveness of a support surface
- Identify materials for use on a support surface.

After registering, you will receive a confirmation email containing information about joining the webinar.

Foam and Composite Support Surfaces – What You Need to Know When Providing an EMP Mattresses

Join us for a webinar on Nov 27, 2018 at 12:05 PM MST. Mountain Std Time

Register now!

This is the second in a series of three presentations providing education relating to prevention of and care for individuals at risk of developing pressure injuries. These three presentations will be of interest to clinicians, home medical equipment providers, and care-providers.

This Second session focuses on Foam and Composite Support Surfaces provided by Essential Medical Products. This session is presented by Phil Mundy (EMP) and Jay Lyon (NuVision Rehab). Phil has over 35 years of experience working in rehabilitation, primarily in medical product development and rehab business development. Jay represented Canada at the 2008 Olympics (Archery). He has a Kinesiology degree from the U of Winnipeg. Jay worked as a paramedic in Winnipeg before joining Motion Specialties and more recently taking on the task of managing AB, SK and MB with NuVision Rehab. NuVision represents EMP. 

Learning objectives for this session include;
- Review primary clinical considerations needing attention when designing a specialized support surface
- Become familiar with material properties that contribute to success and long-term performance
- Learn how to identify EMP products suited for addressing individual client need. Become proficient at configuring more complex support surfaces
- Identify and be able to justify product requirements when writing medical justification documents 

After registering, you will receive a confirmation email containing information about joining the webinar.

Understanding Low Air Loss / Alternating Pressure Support Surfaces – Quart Healthcare West

Join us for a webinar on Dec 04, 2018 at 12:05 PM MST. Mountain Std Time

Register now!

This is the third in a series of three presentations providing education relating to prevention of and care for individuals at risk of developing pressure injuries. These three presentations will be of interest to clinicians, home medical equipment providers, and care-providers.

This third session focuses on Understanding Low Air Loss, Alternating Pressure, and Turning Support Surfaces – Quart Healthcare West. This session is presented by Phil Mundy (EMP). Phil has over 35 years of experience working in rehabilitation, primarily in medical product development and rehab business development. Phil is the President of Quart Healthcare West. 

Learning objectives for this session include;
- Defining terms, understanding how the technology works. Understand differences between various types of Low Air Loss and Alternating Pressure surfaces. 
- Gain some background information that will help support clinical justification for these kinds of surfaces
- Learn how to use tools provided by Quart when matching client need to a specific support surface

After registering, you will receive a confirmation email containing information about joining the webinar.

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Tickets are now available for the Comedy Night in Red Deer featuring Colin Mochrie & Debra McGrath
August 8th 2019 this event is sure to sell out so be sure and get your tickets early!
https://bit.ly/2xoAb3n
 
 
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Good news!  Please read the attached AADL Bulletin regarding Private Insurance and AADL Recyclable Benefits, i.e. who is the first payee. 
 
 
 
 
 
 
 
 
 
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In June, Bill C-81 was introduced in the Canadian House of Commons. Also known as the Accessible Canada Act, this was the first-ever proposed national legislation of its kind. This bill affects all Canadians – and especially people with disabilities.

Over a 10-month period (May 2018-March 2019), more than 50 non-profit, Canadian organizations are working together, and with the Government of Canada, to ensure there is strong, effective federal accessibility legislation. Together, we are known as the Federal Accessibility Legislation Alliance (FALA). Led by Spinal Cord Injury Canada, the FALA Leadership Team consists of the following organizations:

British Columbia Aboriginal Network on Disability Society
Canadian Association of the Deaf - Association des Sourds du Canada
Communication Disabilities Access Canada
Canadian Hard of Hearing Association
Council of Canadians with Disabilities
Native Women's Association of Canada
Here’s what we have been doing so far:

After the first draft of Bill C-81 was introduced in the House of Commons in June, we wanted to better understand it. So, we had a team of lawyers, all who understand disability really well, look at it. They compared the recommendations we made when the bill was being created with what is actually in the first draft of legislation. The lawyer team has made further recommendations. In truth, it is a pretty good bill. But it can be better.

We know it is important that people understand Bill C-81. Legal wording and the length of the bill can make it hard to read. We have developed a short, plain language version for sharing.

Later in September, we will have a survey asking people about their insights and perspectives on Bill C-81. We want to know what you think is important in the bill. What is the impact the proposed legislation will have on your life? The information we get from people’s answers will be sorted in an anonymous way. It will be shared with our memberships and used to advise the government on how they can change the draft legislation to make it as strong as possible.

All of these resources will be shared on our website: include-me.ca. In fact, we will have lots of resources about Bill C-81 on our site, so please visit. You can sign up for our updates right on our home page. Also, follow us on Facebook and Twitter: @includemeca so you know the latest progress on making this draft legislation a reality.
 
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Make sure you tell your family members to join in our Virtual Peer Discussion. It's lots of fun & very informative, dealing with all sorts of topics related to Spinal Cord Injury.
 

 

 

 
 

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